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指定難病 — No.142

ミオクロニー欠神てんかん

検索語 Epilepsy with Myoclonic Absences ・ 最終更新 2026-09-17 11:10 ・ 最新に更新

Data Sheet
指定 No.142
Src PubMed · CT.gov · jRCT

これは医療アドバイスではありません。診断・治療の判断は必ず主治医にご相談ください。論文や治験は「今わかっている研究の状況」を示すもので、効果を保証するものではありません。

( 01 )EVIDENCE / PUBMED · 5件

世界の論文

直近の研究を、やさしい日本語で

各論文の見出しにある「確からしさ」は、その研究がどれくらい信頼できるかの目安です。「理論段階」はまだ仮説に近く、下にいくほど多くの患者で検証されていて、「メタ解析」がもっとも信頼できます。

基礎研究(細胞・動物など)
MK-01 · PMID 42744406

ドラベ症候群のマウスモデルにおいて、クロバザムとバルプロ酸は熱によるけいれんを減らすが、ラモトリギンは減らさない:温度管理システムを用いたマウスでのけいれん抑制効果の評価

Clobazam and Valproate, but Lamotrigine, a Sodium Channel Inhibitor, Reduce the Incidence of Hyperthermia-Induced Clonic Seizures in Dravet Syndrome Mice: Assessment of Anti-Seizure Effects in Mice Using a Stabilized Ambient Temperature System

Abstract / 原文

BACKGROUND: Dravet syndrome (DS) is a severe and treatment-resistant epileptic encephalopathy, most commonly caused by de novo mutations in the sodium voltage-gated channel alpha subunit 1 (SCN1A) gene. Patients with DS often present with febrile seizures. It has been reported that Scn1a mutant mice have the risk for hyperthermia-induced clonic seizures similar to those observed in patients with DS. Using our heating protocol with an incubator, we evaluated the effects of antiseizure medications on the incidence of hyperthermia-induced clonic seizures in mutant Scn1a knock-in (KI)/+ mice. METHODS: For clonic seizure induction in Scn1a KI/+ mice, each mouse was placed into an incubator (38°C-40°C) and observed for 15 min. Antiseizure medications were administered orally 30 min prior to the experiment. The time to seizure onset and the incidence of clonic seizures were analyzed to evaluate and compare the antiseizure effects among treatment groups. RESULTS: Our incubation system increased the body temperature of mice and induced clonic seizures in Scn1a KI/+ mice. Clobazam (CLB) and valproate (VPA) significantly reduced the incidence of hyperthermia-induced clonic seizures in Scn1a KI/+ mice, with 50% effective dose (ED50) values of 1.94 mg/kg (95% confidence interval [CI]: 0.93-3.89 mg/kg) and 255.87 mg/kg (95% CI: 188.66-356.85 mg/kg) respectively, and prolonged the time to seizure onset. In contrast, lamotrigine (LTG), a sodium channel blocker, did not reduce the incidence of hyperthermia-induced seizures. CLB and LTG did not affect the body temperature. VPA decreased the body temperature compared to the vehicle-treated mice before and after incubation. CONCLUSION: These results reflect clinical findings that CLB and VPA suppress, but LTG does not suppress seizures in patients with DS. Our data demonstrate the validity of our test system to induce hyperthermia-induced seizures and to evaluate the efficacy of antiseizure medications in Scn1a KI/+ mice.

今の治療への意味この研究は、ドラベ症候群のマウスモデルにおいて、クロバザムとバルプロ酸が熱によるけいれんを抑える可能性を示唆していますが、これはあくまで動物実験の結果です。人間への効果については、さらなる検証が必要です。
利益相反の可能性株式保有の記載あり

この研究はマウスを使った実験であり、人間への効果を直接示すものではありません。治療方針については、必ず主治医にご相談ください。

Journal
Neuropsychopharmacology reports(2026 Sep)
Authors
11名
Type
Journal Article

11名の研究者による、ドラベ症候群のマウスを用いた基礎研究です。

PubMedで原文を見る
ランダム化比較試験(RCT)
MK-02 · PMID 42700105

初回評価時の特発性全般てんかん症候群の電気・臨床分類:前向き多施設共同研究

Electroclinical classification of idiopathic generalized epilepsy syndromes at initial evaluation: A prospective multicenter study

Abstract / 原文

OBJECTIVE: To determine the extent to which electroclinical information available at initial evaluation allows classification of idiopathic generalized epilepsy (IGE) syndromes, and to assess the contributions of seizure semiology and age at seizure onset to early syndromic diagnosis. METHODS: We prospectively analyzed a cohort of patients with new-onset seizures who underwent a structured clinical evaluation, including detailed history-taking, 3-h video-EEG, and epilepsy-protocol MRI. Seizure semiology was assessed at three levels: index seizure, initial seizure type, and seizure types identified at initial evaluation. Syndromic classification followed International League Against Epilepsy criteria. Final electroclinical diagnosis, established after longitudinal follow-up, served as reference. Within patients ultimately diagnosed with one of the four IGE syndromes, baseline data were used to determine whether the final syndrome could be assigned at initial evaluation. RESULTS: Of 2699 patients evaluated, 498 (18.4%) met criteria for genetic generalized epilepsy, of whom 401 (80.5%) were classified as having one of the IGE syndromes. Based on initial evaluation, the correct syndrome could be assigned in 366 patients (91.3%), whereas 7 (1.7%) would have been misclassified and 28 (7.0%) were not assignable. Non-assignability was confined to absence epilepsies, reflecting overlap between childhood (CAE) and juvenile absence epilepsy (JAE), whereas misclassification occurred only in juvenile myoclonic epilepsy (JME) presenting with isolated generalized tonic-clonic (GTC) seizures. Classification based on the index seizure alone showed limited accuracy (63.6%), whereas incorporation of seizure types identified through structured history improved classification to 95.0%. Myoclonic seizures were highly specific for JME, whereas absence and GTC seizures required integration with additional features. Age at seizure onset strongly differentiated CAE from JAE (AUC 0.935). SIGNIFICANCE: Electroclinical classification of IGE syndromes is frequently achievable at initial evaluation when based on seizure semiology and age at onset. When classification is not possible, limitations follow predictable electroclinical patterns, supporting a structured, history-driven diagnostic approach. PLAIN LANGUAGE SUMMARY: This study examined how accurately doctors can identify specific types of generalized epilepsy when patients are first evaluated. Among 401 patients with generalized epilepsy, the correct epilepsy syndrome could be identified in more than 90% at the first visit. Looking beyond the first seizure and asking about all seizure types together with age at seizure onset greatly improved diagnosis. While some overlap exists between specific types (like childhood versus juvenile absence epilepsy), a thorough clinical evaluation from the start provides reliable diagnostic direction for patients and supports early and accurate diagnosis.

今の治療への意味この研究は、てんかんの患者さんが初めて受診した際に、発作の様子や発症年齢などの情報から、多くのケースで正確な診断が可能であることを示しています。これにより、早期に適切な治療方針を立てるための重要な手がかりが得られます。

この研究は診断の精度に関するもので、治療法そのものを評価したものではありません。診断や治療については、必ず主治医にご相談ください。

Journal
Epilepsia open(2026 Sep)
Authors
7名
Type
Journal Article

7名の研究者による、複数の施設で行われた前向き観察研究です。

PubMedで原文を見る
基礎研究(細胞・動物など)
MK-03 · PMID 42685196

SHHのEVを介した輸送の異常がEPM1てんかんで神経細胞の運命決定を変化させる

Defective EV-mediated transport of SHH alters neural fate specification in EPM1 epilepsy

Abstract / 原文

The extracellular milieu, including extracellular vesicles (EVs), plays a pivotal role in brain development. In this study, we sought to elucidate the pathogenesis of progressive myoclonus epilepsy type 1 (EPM1), a disease caused by mutations in the CSTB gene, using cerebral organoids (COs) derived from patient cells. The results demonstrate that EPM1 COs display increased electrophysiological activity and disrupted excitatory/inhibitory (E/I) balance. Single-cell RNA sequencing analysis of ventral EPM1-COs revealed an abnormal specification of progenitor fate, with a shift toward dorsal neuron identities. We demonstrated that this misspecification is driven by a functional alteration of the ventral signaling niche, resulting from impaired EV dynamics and altered protein cargo. Mechanistically, we identified Sonic Hedgehog (SHH) as a direct physical interactor of CSTB and demonstrated that CSTB deficiency leads to reduced SHH content and secretion. Our findings establish CSTB as a safeguard of ventral patterning and identify the CSTB-SHH-EV axis as a potential therapeutic target for mitigating the E/I imbalance associated with EPM1.

今の治療への意味この研究は、EPM1てんかんの原因の一つとして、脳の発生過程における細胞間の情報伝達の異常を特定しました。SHHという物質とEVの働きを標的とした新しい治療法の開発につながる可能性がありますが、これはまだ研究段階です。

この研究は、患者さんの細胞から作ったモデルを使った基礎研究であり、直接的な治療法ではありません。今後の研究の進展に期待しつつ、現在の治療については主治医にご相談ください。

Journal
Science advances(2026 Sep)
Authors
18名
Type
Journal Article

18名の研究者による、患者さんの細胞から作った脳オルガノイドを用いた基礎研究です。

PubMedで原文を見る
基礎研究(細胞・動物など)
MK-04 · PMID 42650175

4-フェニル酪酸と野生型GAT-1増強の併用療法:SLC6A1変異関連発達・てんかん性脳症の救済

4-Phenylbutyrate Plus Wildtype GAT-1 Augmentation: A Dual Therapy to Rescue SLC6A1 Variant-Associated Developmental and Epileptic Encephalopathy

Abstract / 原文

BACKGROUND: Pathogenic variants in SLC6A1, which encodes the γ-aminobutyric acid (GABA) transporter GAT-1, cause developmental and epileptic encephalopathies (DEEs) through reduced GABA uptake, impaired transporter trafficking, and functional haploinsufficiency. 4-phenylbutyrate (PBA) is a clinically available small molecule with chemical-chaperone and histone-deacetylase-inhibitor activities that can rescue misfolded GABAergic proteins, but variant-level rescue data are needed to guide precision treatment. METHODS: We report a novel de novo missense mutation p.Ala305Val in GAT-1 encoding SLC6A1, in a patient with myoclonic-atonic epilepsy and a developmental and epileptic encephalopathy phenotype. Ala305Val was compared with the residue-matched comparator p.Ala305Thr (Ala305Thr). Variant effects were evaluated by (i) protein-structure prediction across nine stability-prediction algorithms using the cryo-EM-derived human GAT-1 template (PDB 7Y7W); (ii) 3H-GABA uptake assays in HEK293T cells and in human iPSC-derived astrocytes and cortical neurons; (iii) live-cell confocal microscopy of ER colocalization; (iv) pharmacologic rescue with PBA, TUDCA and salubrinal (v) and GAT-1 cDNA gene-augmentation, alone and in combination with PBA. RESULTS: AI-based stability predictors uniformly indicated destabilization of GAT-1 p.Ala305Val and GAT-1 p.Ala305Thr. GAT-1 p.Ala305Val reduced 3H GABA uptake across HEK293Ts, astrocytes, and neurons. The mutant transporter accumulated within the endoplasmic reticulum (ER), with ER colocalization rising from approximately 30% in wildtype to ~80% in GAT-1 p.Ala305Val; PBA reduced ER retention to approximately ~40% and restored total GAT-1 fluorescence toward wildtype levels. Pharmacochaperones (PBA, TUDCA) restored GABA uptake for the mutant transporters. Wildtype GAT-1 gene augmentation improved GABA uptake in the heterozygous condition but combined PBA plus wildtype allele augmentation produced rescue greater than either intervention alone in the available dose-response ranges. CONCLUSIONS: GAT-1 p.Ala305Val is a trafficking-impaired, loss-of-function variant whose dysfunction is amenable to two convergent therapeutic axes: pharmacologic correction of folding and trafficking, and augmentation of functional transporter expression. These findings support a two-pronged precision-medicine framework for SLC6A1-related DEEs in which PBA increased the transporter function augmented by genetic approaches.

今の治療への意味この研究は、SLC6A1遺伝子の異常によるてんかん性脳症に対して、薬物療法と遺伝子治療を組み合わせるという新しい治療戦略の可能性を示唆しています。これは、個々の患者さんに合わせた精密医療の発展につながる可能性がありますが、まだ研究段階です。

この研究は、特定の遺伝子変異を持つ患者さんを対象としたもので、まだ研究段階の治療法です。実際の治療については、必ず主治医にご相談ください。

Journal
Genes(2026 Aug)
Authors
7名
Type
Journal Article, Case Reports, Research Support, N.I.H., Extramural

7名の研究者による、患者さんの細胞やモデルを使った基礎研究および症例報告です。

PubMedで原文を見る
基礎研究(細胞・動物など)
MK-05 · PMID 42632194

GBA1における新規スプライス変異とゴーシェ病および遺伝子型-表現型相関との関連

Novel splice site variants in GBA1 are associated with Gaucher disease and genotype-phenotype correlations

Abstract / 原文

BACKGROUND: Variants in GBA1 are associated with neurodegenerative disease. This study aimed to explore pathogenic GBA1 variants. METHODS: Four patients with progressive myoclonic epilepsy (PME) and extremely low β-glucosidase levels were recruited. Whole-exome sequencing and long-range PCR were performed to identify GBA1 variants. Bioinformatic analyses were used to predict the impact of the identified variants. A literature review was performed to explore the genotype-phenotype correlations. GBA1 expression data across different brain regions and developmental stages were analyzed using the BrainSpan database. RT-PCR was performed to verify the splicing effects. RESULTS: Compound heterozygous GBA1 variants were identified in four patients. Five distinct variants were detected, including two novel splice site variants (c.308-2A>G and c.762-2A>C) and three previously reported variants. All identified variants were rare or absent in gnomAD. Splice site variants c.308-2A>G and c.762-2A>C were predicted to cause aberrant splicing. Minigene-based splicing assays coupled with RT-PCR and Sanger sequencing confirmed that both variants cause complete exon skipping (exon 4 and exon 7, respectively). All patients presented with PME onset in childhood/adolescence, intellectual regression, low β-glucosidase, and diffuse brain atrophy and were subsequently diagnosed with Gaucher disease type 3. GBA1 expression in the brain showed two distinct peaks: one in infancy and another after five years of age. The onset age of PME aligned with the second GBA1 expression peak (after five years of age). CONCLUSION: This study identified compound heterozygous GBA1 variants, including two novel candidate pathogenic splice site variants, in Gaucher disease type 3 patients, expanding the known mutational spectrum.

今の治療への意味この研究は、ゴーシェ病3型における新しい遺伝子変異を特定し、病気の原因解明に貢献するものです。遺伝子の変異と病気の症状との関連(遺伝子型-表現型相関)を明らかにすることで、将来的な診断や治療法の開発につながる可能性がありますが、現時点では研究段階です。

この研究は、ゴーシェ病の原因遺伝子に関するもので、直接的な治療法を提示するものではありません。病状や治療については、必ず主治医にご相談ください。

Journal
Brain & development(2026 Oct)
Authors
11名
Type
Journal Article

11名の研究者による、ゴーシェ病3型患者さんの遺伝子解析を中心とした基礎研究です。

PubMedで原文を見る
( 02 )TRIALS / JAPAN · 0件

日本で参加できる治験

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日本で現在募集中の治験は見つかりませんでした。下の公式レジストリで条件を変えると見つかる場合があります。
( 03 )REGISTRY / jRCT

治験をもっと探す

日本の公式レジストリで全件を確認

上の一覧は ClinicalTrials.gov の一部です。日本国内の治験の多くは、日本の公式レジストリ jRCT にのみ登録されています。下記から最新の全件を確認できます。

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( 04 )SUPPORT

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一人で抱え込まないでください

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